Families of Adults Affected by Asperger's Syndrome

Second of Four Parts

Public spending on children with autism in California varies greatly by race and class. A major reason: Not all families have the means to battle for coveted assistance.

From the day her son was diagnosed with autism nine years ago, Stacie Funk has made it her full-time job to find him the best possible help. Hiring lawyers and experts to press her case, she established herself as a mother whose demands could not easily be dismissed.

The result has been a bounty of assistance for Jonah: A behavioral therapist who works with him at home and comes along on family outings, a personal aide at school and specialists to design his curriculum, improve his speech and refine his motor skills.

So far, the state of California and the Los Angeles Unified School District have spent at least $300,000 on specialized services for Jonah.

Now 13, he bites his hands , pinches his younger siblings and is easily flustered by changes in routine. But his mother is proud of the progress he’s made — his ability to express his needs, read aloud and surf the Internet for movie trivia.

The outside support, she said, helps hold the family together.

“Am I more entitled than someone else?” said Funk, of Encino, whose husband owns a trophy-parts business. “No. But that’s how the system is set up.”